Sudiksha Thirumalesh Wiki – Sudiksha Thirumalesh Biography
The 19-year-old can now be named Sudiksha Thirumalesh, after legal restrictions were lifted. “We were gagged, silenced and prevented from accessing specialized treatment abroad,” said his brother Varshan. Her NHS trust, which cannot be named, said Sudiksha needed end-of-life care rather than ongoing treatment. The 19-year-old, who suffered from mitochondrial disease, went into cardiac arrest and died earlier this month before the UK Court of Protection could hear her case. She wanted to raise money to try to fly to Canada to receive an experimental nucleoside therapy that she thought could help her rare genetic disorder. In August, a judge ruled that she couldn’t make the decision herself because she didn’t have the mental capacity. Her doctors said her breathing difficulties were due to deteriorating mitochondrial disease that was weakening her muscles, rather than long-term Covid or other infections she had had. Lawyers for the trust said Thirumalesh, known as ST during the legal case, was “actively dying” and needed a ventilator to breathe.
Sudiksha Thirumalesh was 19 years old.
Family of ill teen say they were ‘brutally silenced’ by courts
Her family says the former A-level student, who had spent almost a year in intensive care, was still able to communicate with her doctors with the help of her mother and, at times, speech therapists. The judges were told that she was a “fighter” and that she had told a psychiatrist: “I want to die trying to live. We have to try everything.” Speaking outside the High Court, her brother Varshan Thirumalesh said in a statement: “We are deeply concerned about how we have been treated by the hospital and the courts. “We have been gagged, silenced and, most importantly, prevented from accessing specialized treatment abroad.” A judge had previously imposed reporting restrictions in the case. The order meant it was impossible for the media to name Sudiksha, and her family were unable to campaign to raise money for treatment abroad. Her Christian family wanted the order lifted after her death and successfully challenged the ruling on Friday. A second decision on whether the NHS trust and doctors who treated her can be named is expected to be made on Monday. Sudiksha was diagnosed with the same condition as Charlie Gard, a London baby, who was taken off life support in 2017.